Lindsay gave up ballet when she was diagnosed with Hypertrophic Cardiomyopathy, now she has traded in her ballet shoes for a new life. Read more…
Dancing Through Hypertrophic Cardiomyopathy: Raising Awareness for HCM
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Impact of Clear Definition of SCA
Another reason why it’s so important for this community of young survivors to unite — it’s hard for people to fathom your experience, as this new study shows. Watch this video…
The Day I Died…Part 2
Eventually the counselors escorted all of the campers out of the gym. Someone called 9-1-1 implying that a teenager had a broken bone. Quickly, after a second 9-1-1 call came through saying a 17-year-old boy was on the ground and unconscious. My hero, Bob, was working his job in a building next door to the […]
Matt’s Mom Celebrates His Re-Birth Day
September 15 is the anniversary of our son, Matt Nader’s SCA. It’s a day I will never forget. Frankly, it’s one I still remember every day. And we have celebrated his second “birthday” for ten years now, because there was a defibrillator on his team’s sideline that day and we were prepared. While his dad […]
Surviving…And Thriving With Long QT
When initially diagnosed with Long QT Syndrome 1, I was a freshman in high school, a varsity cross country runner, a club soccer player, and an heavily involved NJROTC cadet. All of that changed when I went to a seemingly inconsequential heart screening at my high school. There, I was given an EKG and, to […]
A Heart Mystery
After a normal meal with my family, on the ride back from the restaurant, I exclaimed, “I’m dizzy”. Immediately after I had lost my pulse and my heart had stopped. After the police arrived, they were able to get me with a weak heartbeat after I was without one for almost 20 minutes. I was […]
Jacob Li’s Heart Screening Saved His Life
My name is Jacob Li. I am 16. I surf, snowboard and play on my high school’s JV Basketball team. I volunteer in the community teaching kids how to play basketball. I am one of 171 teens screened through the Eric Paredes Save A Life Foundation who had a heart abnormality which puts us at […]
Music From The Heart
Hello, my name is Ben. I am a 14 year old high school freshman. I was diagnosed with Hypertrophic Cardiomyopathy, or HCM in the summer of 2014. Throughout my life, I have been heavily involved in sports. I played baseball, soccer, track, and my favorite, hockey. When I was born, I had two small holes […]