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Music From The Heart

October 26, 2016 / connectedbyhearts / Heart2
2
ben

Hello, my name is Ben. I am a 14 year old high school freshman. I was diagnosed with Hypertrophic Cardiomyopathy, or HCM in the summer of 2014. Throughout my life, I have been heavily involved in sports. I played baseball, soccer, track, and my favorite, hockey. When I was born, I had two small holes in my heart. Neither were life threatening, but the doctors needed to keep an eye on them. I have basically gone to my heart doctor at least every year since I was born. When I was eleven, my doctors gave me great news. I was told that both holes in my heart had fully closed. I was told to follow-up in one year just to be safe.

The following year I returned to my cardiologist for a routine EKG and echocardiogram. My parents and I were completely shocked when the doctor informed us that a potential new problem was detected – my heart muscle was growing too big and too fast. I was sent into Boston for a cardiac MRI. I was frustrated that I needed to go through it. A few days later my doctor called with my test results and I was officially diagnosed with Hypertrophic Cardiomyopathy. Because of my diagnosis, I needed to make some changes that would change my life forever. I needed to stop playing hockey, track, and anything that causes my heart to work hard for an extended period of time. My world of sports seemed over, but I never wanted to give up.

I remember sitting outside when my mom told me the news that I had HCM. I was sad that I had to stop playing competitive hockey. I was mad that I had to give up some of the things I loved. In that difficult moment my parents encouraged me to focus on all the things that I can do and not the few things I can’t. I spent most of that summer listening to music and teaching myself to play guitar. Music has become my new passion. I write music and play acoustic and electric guitar. I’ve started a band with my brother and a couple friends from school.

I still enjoy sports, but I participate in a different way. I wear a Fitbit that tracks my heartrate so I can play and be safe. When I play sports now, I sometimes think about my condition and the increased risks I face. I am thankful that I can still play soccer goalie for my club team and run around with my friends. The most valuable thing I have learned throughout my experience is to always look on the bright side and don’t focus on the negative.

2 comments on “Music From The Heart”

  1. Mike Papale says:
    November 3, 2016 at 2:39 am

    Ben, I have HCM as well. When I was 17 years old I went into cardiac arrest. My dream was to play college basketball. Unfortunately my dream all came to an end when my doctor told me I could no longer play competitive basketball. It was one of the most difficult things I had to deal with. I learned that basketball was important, but life was more important. I hope you are doing well and I am glad to hear you are still active!

    Reply
  2. Claire Luning says:
    February 14, 2017 at 6:04 pm

    Hi Ben! I am a senior in high school and was diagnosed with my heart condition when I was going into junior year. I had to give up sports too and I have also found a new passion in music (I play the banjo)! It is really inspirational to hear of another young person overcoming these obstacles and focusing on being optimistic. I love that you focus on the things you can do rather than the ones that have been taken away. I hope you have an awesome high school experience and continue music! -Claire

    Reply

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